Friday, July 18, 2008

My search for funds

I am giving it my all to get funds to help my mother. I have been knocked back by alot of government agencies. I am not asking for alot of money, for the government it is like a drop in the ocean. I don't know how it makes sense to have a drug (flolan) and put it on the PBS then not make the pump available to dose it. The medicine is the only thing standing in the way of my mother having a functional life. It is hard enough being sick without trying to find funds to get better. Pulmonary hypertension doesn't just effect a persons health it also eats away at a persons soul. I don't know how my mother does it. To all the pulmonary hypertension sufferers out there, the unrepresented, the breathless without voice, Stay strong, fight for what you need. The prevalence of Pulmonary hypertension is on the rise mostly the secondary type because of the fen phen phenomenon and also the amount of people sufferer with aids is very high and they tend to get Pulmonary Hypertension in it's secondary form. Regardless of cause the voices will get louder and always historically speaking there is power in numbers, then the governments of the world will have to make pulmonary hypertension medicines available. I hope to find a Pulmonary Hypertension support group within Australia that isn't just interested in having tea with cookies.

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